Care for Rare.

Putting the spotlight on rare disease.

Over the years we have been privileged to meet individuals with over 80 different rare diseases, who have each shared their personal experience of the impact rare disease has had on them and their family. The Care for Rare encouraging viewers to look beyond first impressions.

Our collaborations with patient organisations worldwide has provided us with a broad network of contacts of patients with rare disease and their physicians, crucial to the success of our campaigns, which have reached 110 countries.

Watch Tyler’s video

Watch Hannah’s video

The Care for Rare campaign reached over 49 million people.

The stories have been presented to over 2000 organisations.

Care for Rare has highlighted and empowered 47 families experiencing rare disease.